Diabetes Diary 3/7/15

It is 3:33am, his BG114. That's a beautiful number. We tried to go to bed around 9:30pm last night, but his body had other ideas with a BG64. So, we hung out for a little while longer. 

Diabetes for a child is a funny thing. I get annoyed by hearing daily others compare type 2 to type 1 and how there is a cure. How he must exercise, watch what he eats, it's all from what he ate. Sometimes, I wish medically they would have named Juvenile Diabetes or Type 1 Diabetes something completed different just so society doesn't need to be taught on a regular basis the difference. 

I got a phone call from his Endo's office yesterday. We are getting ready to plan for his basal rate. What you ask is that? Well so did I? It is our baseline blood sugar rate. We have a working pancreas, therefore we don't notice our pancreas infusing insulin into our bloodstream as needed. Daniel will receive his pump in the mail in a few days. Brand new. A computerized pancreas that hasn't been programmed just for him. It's going to take a few more weeks of research along with classes to program his pump and teach us how to use it. 

For now... No more 2am checks unless needed of course of lows or illness, but this is my new schedule... No food after 7pm. Blood sugar check at 9pm, 12am, 3am, 6am... 

And then I continue along with his normal daily cycle of breakfast, school, snack, lunch, snack, after school, sports, and return to the night schedule. He can not miss a check, a correction for a high or a low. This is the most important recording time than I have been recording since October 2014. 

There are people who find myself selfish, rude, ungiving... Honestly, I don't even have the time or the energy to entertain them at this moment. Until you walk a moment in the shoes of a parent with a child with Type 1 Diabetes you will never understand the lack of sleep, the worry, the seizures, the vomiting, the inability to wake your child up, the fear that's the last time they will ever wake up, the depression that comes with the reality that this is our normal life, but with this comes a power of strength that allows us to do this and that comes from being chosen from God to be the parent of a child with Type 1 Diabetes because we are strong enough to endure it! 

I'm pushing forward and waking up nightly for my little boy. I will do anything to make sure his quality of life is as grand as can be. Time to try to fall back asleep. That's always been the hardest part for me.