His June pump supplies have arrived. We have changed his new catheter and infusion sets. He was having a reaction to the others. Don't let the boxes fool you. The boxes hold 10 per box, but we only get one full box. The other contains only 5. There is no room for errors, high blood sugar changes, broken insets, bad sites, insets that fall out, or clogged catheters. The stresses of being a type 1 parent as all of my friends in this type 1 community know.
I met a follower this weekend. This post is for you! She says my posts about Daniel have inspired her to try the pump after 15 years. So, I promised to share more about how it's honestly been going for my followers who have been wondering. I realize I took a break to share family things just to show that diabetes doesn't mean we don't live a normal life as much as possible. We do or at least we try. I don't like only posting the sad news. It gets depressing and sad. Plus, it is personal to post only the bad news or pictures of my son ill. I hope my followers understand.
With that... He is now on the Cleo 90 inset. It has no cloth of any kind on the inset. He seems to be allergic to the cloth. It would itch, cause hives, fall off, and stay that way for days at each infusion site.
The Cleo as you can see inserts straight into the skin as a circular object with just a type of medical tape. The infusion set itself can clip anywhere around the inset. It's actually nice. It can clip in a circular location so he can clip in forward, backward to his back pocket, basically to whatever he is wearing at the moment. It's convenient.
Daniel says it's very comfortable. He prefers it. He tried the 6mm metal syringe straight into the skin, but he said after a day he could feel it. This is a 6mm as well ,but he doesn't feel it.
He does have sensitive skin and it still leaves a little redness and the tape leaves a ring that we use alcohol to remove. But, he says it does itch and in about an hour the redness is gone.
This was the original insets that came with the T-slim insulin pump that he is allergic to. It wouldn't stay on after a week. His body would reject it once his skin hived up and itch horribly. His skin would also start to heal around the injected site so we get an occlusion blockage error and insulin wouldn't enter his body. His body was rejecting the inset.
We tried 3 different insets, different skin preps, prescription creams, allergy medication, and with his sensitivity we only have the mental syringe as an option and he doesn't want to wear a needle in his skin all day long. That's the reality of pump therapy. It's not a perfect cure. But, his blood sugars have been in the 100's 68% last week and that is a vast improvement in his quality of life.
His eye exam came back well. He has some sun damage already. Optometrist recommended he wears sunglasses always when outside. But, blood vessels inside his cornea from high blood sugars are beautiful. Thank God!
I'll enjoy the little things. His pump therapy has been a steady 10% improvement in blood sugars weekly. As a type 1 parent I'll accept those percentages as a huge blessing.
Wishing everyone great numbers and healthy kids this week. And to my follower I met this weekend ... It's worth all the nights of testing, no sleep, stress and worry. Thank you for approaching me and introducing yourself. I share my story to inspire. I'm glad I inspired you! Good luck on your journey. Call me anytime with any questions along the way.
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