Sunday, April 12, 2015

First week of trial

We are over our first hurdle in our first weekend in our trial week of our insulin pump. We had a horrible Saturday. Ketones we present, numbers reached 400's, this Mama listened to Dr. Hathout who thank goodness was on call this weekend and she said I could do it, I caught it early and follow my intuition and instructions I've been taught. In two hours, his ketones went from moderate to none! I was amazed. I gave corrections for the remainder of Saturday and most of Sunday every two hours. Tonight his bedtime BG94. All is back to normal. 

That's the funny thing about diabetes, you never know when it's going to hit you. You never know when it's a good day or a bad day. And when it's a bad day, it's always a day that ruins your plans and you as a family have to change all your plans in an instant for your child. We have become use to this. I don't remember any other way of life. I run around like a chicken with her head chopped off every single day. Some days are better than others. But, in the end, I always remember we made it. I thank God, kiss my boys goodnight and keep going. 

Daniel did his first site change on his own on Saturday. Since he was due for a site change anyways and he was suffering a high we did it earlier in the day as doctors orders requires. I'm so proud of him. He's such a brave little man. 

I don't think I could do this. I am amazed by my son every single day. He's truly my hero! The pump process is going well I think. I have a few questions for our next class on Tuesday before we go straight off Lantus and on Humalog only. I need to minus insulin and our pump doesn't minus yet. I'm guessing the simplest way will be to manually do the math from the carbs, but I'll need to make sure from his RNs. He enters everything and is getting very comfortable wearing it and entering everything. It's like him having his iPhone with him. Another added responsibility for this little boy. Poor kid has so much responsibility at eleven years old. 

On the bright side he did get to build his first skateboard he's been asking for at the vans store. He wanted it for his birthday and his new Brother-in-law is home from bootcamp and wanted to share this experience with him so they went to the vans store together and built him a custom skateboard from the ground up. He is so excited and so happy. I have to admit I know nothing about any of the pieces and when I saw the receipt I was in shock. But, if any kid deserves it, it's Daniel! So thank you to Michael for taking the time out of his home time to spend the afternoon building a skateboard with his little soon to be little brother... You made his world a little bit brighter. I'll have to post some videos of Daniel doing tricks next time. He's actual surprised me with some of his tricks he has learned. 

Most of the rest of our weekend has been spent with usual family time. With the pump schedule taking up so much time our days seem to fly by. We try to slow things down as much as possible. 

Sunday Mass with the kids before brunch. Michael enjoyed about three hot chocolates as we laughed. It had been over three long months since he's been able to enjoy a hot chocolate. 

Landon loves calling his big brother a soldier and Daniel wants him to pick him up from school next week in his uniform. I guess it is pretty cool to have a Marine as a big brother for a little boy. 

Faith and Michael headed out to Sacramento in our Kia Soul for a couple days of adventure as Michaels platoon mate was proposing to his girlfriend. On their way up they decided to stop and shop for her ring and I got to FaceTime and video chat the entire engagement! I was one excited Mama! What a cute love story. Oh... It's like the notebook, dear john, the vow... 

Life is good. Happy kids! Next weekend is the wedding. My older daughter will be home. I can't wait. My house will be full of girls and I am excited! This will be an exciting week for me. 

I guess it's true, I don't need sleep. Time to check blood sugar in 45 mins. Boys are asleep, Hubby's asleep, and I'm blogging. I will admit I'm tired, but somehow I'm functioning. I'm not eating well. I'm forgetting to eat. Thank goodness for kashi bars. I also eat what Landon my toddler doesn't finish when I cook for him. I need to take better care of myself. That will need to be my focus this week. I don't need to suddenly have a day that I'm run down and exhausted. 

More updates after class on Tuesday. I'll start my first download tomorrow night onto the computer. This will be interesting. Hope I get it right so they can read it at class on Tuesday. 

Have a great night all my type 1 families and groups out there. Praying we all have good numbers and safe kids tonight. 

No comments:

Post a Comment

 

Blog Template by BloggerCandy.com