Pump Ready

Today was our first insulin pump class and it was basically a math class of calculating new ways of his corrections and meal boluses. After three years of having everything memorized, it's different, but I'll get the hang of it. No more Lantus and Humalog all day in smaller doses throughout the day via the pump. 

It was interesting to learn how they calculated the amount of insulin the pump would be giving him per hour and how we would give him corrections or remove the pump if needed when he is having a low until we figure out his basal rate. The times of checking his blood sugars every two hours is overwhelming, but I know once we get through it he will be ok. 

I am exhausted as it is. His RNs have assured me I can do this and I know I can. Just the thought that I'm functioning on only a couple hours at a time scares me and I know I will be forgetful. I have decided to get a calendar and write everything down the old fashion way. I've gone grocery shopping for the week with simple menu items for dinner. Life will be simple for the next 6 weeks while we adjust to our new life on the pump and our lack of sleep. 

His RNs Patricia from September 2012 and Merilee his dietician as well.  Just missing Menuu who was his initial RN at diagnosis. These RNs have cared for him since he was on insulin with syringes, to insulin pens, and now to the insulin pump. Patricia and I speak at least twice a week and I couldn't get through my week without her. She helps me through my most exhausting moments when I am so tired, can't figure out why I can't control his numbers, to helping cope with the ex-husband. She is amazing. Caring for Daniel without her would be impossible. The RNs at Loma Linda Children's Hospital are the reason I will not leave San Bernardino County. They truly care for my little boy. 

Tomorrow at 3pm, I will have a home visit and he will be hooked up to his pump. He will learn how to run his pump on saline and change his site on his own this Saturday and then we return to Loma Linda next week on Tuesday. He will change his site again on his own and he will be on insulin as a pumper! Amazing! I can't believe it! 

Nights of no sleep, school days of lots of sugar checks, constant adjustments, accurate record keeping... All of it is completely worth it for this moment. My little boy is worth it! Mommy loves you very much Daniel!