Wednesday, April 8, 2015

He's a pumper


And just like that... He's connected to his pump. It took a second. He said he didn't even feel it. 

We spent two hours with our Tandem T-Slim Representative. She help create the users guide so she was very informative. She was absolutely a doll to work with. She showed us the coolest short cuts, the easiest and most convenient ways to create new profiles for his sports so I wouldn't need to enter all his orders over again each time, she showed us ways to see if he took his last meal bolus, ways to check on him that I didn't know we could which made me feel better knowing as a mother of a tween I can let him grow up and trust that his pump will tell me everything. 

The ability to communicate with Loma Linda children's Hospital and Her via the remote access is wonderful. No more old fashion faxing for this Mama! Being able to download on a weekly basis from his pump so his Doctors can see how he is doing is wonderful. Such a great way to care for his diabetes and manage his health. This is the best decision we made and worth all the late nights and stressful days to get here. 

We are not in the clear yet. We still have many weeks of recording to go. I have lots of changes to make as his RNs and Doctors change his orders. His long lasting insulin is gone now. He only receives fast acting insulin so therefore he can get into trouble fast now if his insulin goes bad, his site is bad, or he is struggling to get his blood sugars down. This pump doesn't mean he is free and clear yet. Right now, we have to watch him very closely. Now is not the time for mathematical errors or laziness. This is when my son needs us the most. It's absolutely worth it. He's so happy. I'm happy for him. 

Here's the process of filing his cartridge for his trial.

Removing the tubing to attach to the cartridge.



Filling the tubing.

Checking for air bubbles. 

Inserting needle (infusion) into Daniel. 

He's connected. 

I will change his site this way every three days and make any insulin changes per doctors orders. Everything is done by me. I think that's the scariest part for myself. I thought the RNs did it. But, no I do it. I'm responsible for all the input into his pump and how much insulin in being infused into his body. 

I'm glad the representative was here at my home. Learning the pump was so simple and easy. Entering the information from the doctors orders was easy. Being remotely connected to Loma Linda makes this transition seem effortless. They have really thought of everything. I could not imagine caring for my son without the staff at Loma Linda Children's Hospital. I just can't leave them. 

Good night for now. I've got a million things to do before bed and blood sugar checks on our first night on the pump. I have so much to log and chart. I'll try to blog as much as I can. Please excuse my typos as I'm using my iPhone not my laptop and I'm blogging when I have a few minutes for all my diabetic families and groups who have asked. This might be harder than I thought. Toddler is crying now too. Wishing everyone a blessed night. 

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